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Patient-Oriented Quality of Life and
Functional Status Instruments
American Thoracic Society Quality of Life Resource Quality of Life Instruments Patient-oriented quality of life and functional status instruments that have been used in assessing patients with pulmonary disease or critical illness; assessment must be published in peer reviewed literature; instrument development as well as reliability and validity must be published in peer reviewed literature; includes an explanation of key measurement issues relating to the instruments. Medical Outcomes Trust List of all generic and condition-specific instruments that have been approved by the Scientific Advisory Committee of the Medical Outcomes Trust; includes description and ordering information. Medical Algorithms Project Institute for Algorithmic Medicine 11,000+ scales, tools, assessments, scoring systems, and other algorithms useful in medicine and biomedical research; Free registration; Chapter 1 - Performance Measures & Quality of Life. National Centre for Health Outcomes Development Bibliographic database comprising over 8600 records relating to patient-reported health instruments; systematic reviews of outcome measures relevant to specific disease and population groups; instrument selection including guidance regarding the selection of appropriate instruments for use in clinical trials, clinical practice, and population surveys; and links to related websites including instruments, resources, organizations, research groups, and journals. Patient Reported Outcomes Measurement Information System (PROMIS) NIH Roadmap Assessment Center is now open; Version 1.0 PROMIS Item Banks and Calibration Analysis Summaries for Social Function, Pain, Fatigue, Physical Function, and Emotional Distress Domains. PROQOLID: Patient Reported Outcome and Quality of Life Instruments Database Mapi Research Trust Descriptions of 605 instruments; 467 review copies of original instruments; review copies of 745 translations; review copies of 158 user manuals; descriptions of 80 databases; links to over 150 relevant external web pages, patient reported outcome instruments, major organizations and research groups, major journals for number of articles on patient reported outcomes, online newsletters, and methodology. QualityMetric, Incorporated QualityMetric Incorporated is a leading provider of health status and outcomes measurement products and services that use proprietary and analytical methodologies to capture, benchmark, and interpret actionable patient-reported health information. Health and Psychosocial Instruments Licensed by the NIH Library Ready access to information on measurement instruments (questionnaires, interview schedules, checklists, index measures, coding schemes/ manuals, rating scales, projective techniques, vignettes/scenarios, tests) in the health, psychosocial, and other fields. Joint Commission Measure Reserve Library Joint Commission on the Accreditation of Healthcare Organizations The Joint Commission plans to establish a performance measures library that will provide stakeholders with ready access to reliable, tested and evidence-based measures that can be used to improve the safety and quality of health care. The first stage of implementation will focus on populating the library with the existing core measures and with measures recently developed or specified by the Joint Commission, such as the Intensive Care Unit and nursing sensitive care measures. Future implementation phases will focus on converting the library into a fully automated, searable web based tool. Eventually, the Joint Commission's library will incorporate externally developed measures that have been evaluated by the Joint Commission and found to meet rigorous criteria. National Quality Measures Clearinghouse Agency for Healthcare Research and Quality A public repository for evidence-based quality measures and measure sets. Quality Tools Agency for Healthcare Research and Quality A clearinghouse for practical, ready to use tools for measuring and improving the quality of health care; includes tools for Providers (Guideline Related Tools, Patient/Medication Safety Tools, Benchmarking and Comparative Data, Disease/Condition Tools, Prevention and Wellness Tools), Policymakers, Patients and Consumers, and Payers and Purchasers. National Quality Measures Clearinghouse Agency for Healthcare Research and Quality NQMC is a public repository for evidence based quality measures and measure sets. Browse by Disease/Condition, Treatment/Intervention, Domain, Organization, Measure Archive, Measure Index, Measure Initiatives, Measures Most Viewed. Judith Welsh, MLS, BSN, RN Biomedical Librarian/Informationist NIH Library, 10/1L13 301.594.6211; welshju@mail.nih.gov |